Jesy Nelson told her twin babies will never walk after devastating diagnosis<\/a><\/span><\/span><\/p>\nCelebrities have rushed to support Jesy. Love Island’s Shaughna Phillips told the new mum: “Sending you and your girls so much love and positive prayers, you are a superwoman and they are lucky to have you.”<\/p>\n
Jesy’s ex partner Chris Hughes shared: “A warrior Jess. Be easy on yourself. Sending prayers to you all, everyone is behind you guys.”<\/p>\n
Liam Payne’s grieving sister also showed her support for Jesy, as she navigates the heartbreaking news. She wrote: “Sending so much love to you all xx”<\/p>\n
Former Made in Chelsea star Ashely James added: “Jesy I\u2019m so sorry. I\u2019m thinking of you and your girls and sending love.” While fellow reality star, TOWIE’s Megan McKenna shared: “My heart is breaking for the pain you are in right now. Sending so many prayers and love to your beautiful girls.”<\/p>\n
Meanwhile, Simon Cowell’s wife Lauren Silverman also responded with her support of Jesy, reassuring her she is in “great hands” with Great Ormond Street. She posted: “Jesy, I am so sorry to hear this. It\u2019s absolutely devastating.<\/p>\n
“Simon and I are ambassadors for great Ormond street hospital. I know if anyone can help you and give your girls the best possible chance at beating this and fighting it, it\u2019s them. This is why we are so passionate about this charity. The work they do is amazing and I really know that by being with them, you\u2019re in the absolute best hands. I am praying for you all and sending you so much love and strength.”<\/p>\n
TOWIE star Jess Wright said she was “Sending you so much love and strength” with co-star Amy Childs adding: “I\u2019m so sorry Jesy what your going through x sending love and strength to you and your beautiful girls xxx”<\/p>\n
Phats and Small singer, and Vanessa Feltz’ ex, Ben Ofeudu wrote on Jesy’s post: “I\u2019m so sorry to hear this May God give you the strength to get through this and may he also bless your girls with his divine power.” Singer Kamille, who worked with Simon Cowell on his recent Netflix documentary wrote: “I\u2019m so sorry, sending so much love.”<\/p>\n
Traitors season two winner Leanne Quigley shared: “Sending so much love and prayers to you and your brave girls.”<\/p>\n
In her Instagram video, brave mum Jesy said the rare genetic condition affects every muscle in the body from the legs and arms to swallowing. The star said she is now acting as a full-time nurse to her girls and has had to do ‘things no mother should.’ The diagnosis came after her mum pointed out the girls were not moving as much as they should for their age.<\/p>\n
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<\/g><\/clippath><\/defs><\/svg><\/span>Jesy Nelson and her baby daughter, Ocean Jade<\/span>(Image: Ken McKay\/ITV\/Shutterstock)<\/span><\/figcaption><\/div>\n<\/button><\/div>\n
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<\/g><\/clippath><\/defs><\/svg><\/span>The singer encountered complications during pregnancy and was kept in hospital for months<\/span>(Image: Instagram\/jesynelson)<\/span><\/figcaption><\/div>\n<\/button><\/div>\n<\/div>\n<\/div>\n
Jesy began the video: “I wanted to come on here to share some news with you guys. I\u2019m not actually sure where to start with this video.<\/p>\n
“A few months ago my mum noticed that the girls were not showing as much movement in their legs as they should be.<\/p>\n
“It wasn\u2019t really a concern to me at the time. From the minute I left NICU I was told, ‘Your babies are premature so don\u2019t compare your babies to other babies. They won\u2019t reach the same milestones take them as they are.’<\/p>\n
“It didn\u2019t really ring alarm bells to me. They are my first set of children and I was told not to compare to them. Health care visitors insisted everything was fine and the girls are healthy.<\/p>\n
“There were a few signs later on that the girls were struggling to feed properly. We would take them to the GP and say \u2018Our babies are not feeding as frequently as they should.’ They said it was fine and to try little and often.”<\/p>\n
Jesy went on: “Long story short, after the most gruelling three to four months and endless appointments, the girls have been diagnosed with a severe disease called SMA type one. It stands for Spinal Muscle Atrophy which affects every muscle in the body from legs, arms, swallowing.<\/p>\n
“Over time it kills the muscles in the body. If it\u2019s not treated in time, your babies life expectancy will not make it past the age of two.<\/p>\n
“Once the girls got treated it was a very rapid process. Time is of the essence with this disease.<\/p>\n
“When they assessed the girls at Great Ormond Street, we were told they were never going to be able to walk. They would probably never regain their neck strength. They will be disabled,” said Jesy.<\/p>\n
“The best thing we can do right now is to get them treatment and hope for the best,” she added.<\/p>\n
“Thankfully the girls have had their treatment which I\u2019m so grateful for. If they didn\u2019t have it they would die.”<\/p>\n
Explaining how her life has been turned upside down, she explained: “The hospital has become my second home. I feel like I’ve had to become a nurse within two weeks of getting the diagnosis. I’ve had to do stuff no mother should have to do to their child. I made this video because the last three months have been the most heartbreaking time of my life.”<\/p>\n
Breaking down in tears, Jesy said: “I know i have to be grateful. At the end of the day they are still here and that’s the main thing. They’ve had their treatment. I truly believe that my girls will defy the all the orders and with the right help they will fight this.”<\/p>\n
Jesy also went through a complicated pregnancy, during which her girls were diagnosed with twin-to-twin transfusion syndrome (TTTS), which she also documented on social media.<\/p>\n
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