Jesy Nelson is staring down a situation that no parent would want to face.
The former Little Mix member turned to Instagram recently to share some devastating news.
In a video, Nelson provided a health update about her 8-month-old twin daughters, Ocean Jade and Story Monroe, revealing that they have been diagnosed with a rare genetic condition called Spinal Muscular Atrophy (SMA) Type 1.
“We were told that they’re probably never going to be able to walk,” the 34-year-old tearfully explained in the clip. “They probably will never regain their neck strength, so they will be disabled. And so the best thing we can do right now is to get them treatment, and then just hope for the best.”
“Thankfully, the girls have had their treatment, which you know, I’m so grateful for because if they don’t have it, they will die,” she added.
Also heartbreaking was the fact that the singer admitted to feeling “like a nurse” for her daughters since she’s had to put them on breathing machines and see about “lots of stuff that no mother should have to do.”
The condition is an inherited neuromuscular disorder that causes muscle weakness to the point that they can waste away, according to the Cleveland Clinic. There are five subtypes, which range in severity to age of onset.
SMA Type 1 makes up about 60% of cases, with symptoms usually showing up in the first six months of life. Since there is no cure, certain therapies and medications are able to help manage symptoms.
The identical twin girls were born to Nelson and her fiancé, Zion Foster, on May 15, 2025. They were born prematurely at 31 weeks after the singer experienced complications from carrying monochorionic/diamniotic twins.
These are twins that share a placenta but have separate amniotic sacs.
To Nelson, sharing her bad news on social media will hopefully reach women who are also facing the same, anguishing diagnosis and pinpointing similar symptoms in their child.
“I just think that I can raise as much awareness about this as possible, and the signs, then, you know, something good has to come out of this,” she said.
Nelson also described tell-tale symptoms such as the inability to hold themselves up without support, a “frog-like” leg position, and rapid tummy breathing.
“If anyone is watching this video and they think they see these signs in their child, then please, please take your child to the doctor, to the hospital, because time is of the essence, and your child will need treatment. And the quicker you get this, the better their life will be.”
‘ The preceding article may include information circulated by third parties ’
‘ Some details of this article were extracted from the following source www.pennlive.com ’
